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  #1 (permalink)  
Old Jan 06, 04
in love with lostboyscout
 
Join Date: Oct 2001
All!e is an unknown quantity at this point
So I Leave On The 14th ...

Yup I will be gone from the 14-18 ...

I have my injection on the 15th at noon then I go back on the 16th for my scaning.

That is all that this treatment is -this- time ... I come home on the 18 and from the 15 to the 25th or so I am not allowed to be around children under 12 and pregnant women. Why you ask? Well because the injection they give me is a radioactive goop that can damage the thyriod and in children and pregnant ladies it is more so damaging. [so you wont see me then i will be a hermit?]

After that first 10 days or so, of puking and feel like shit I will then start my "up" stage ... I will still not be going out a lot because my white blood cells will be low ... [much slower at rising then after chemo] ... so by about the end of the first wk of feb I should be ok to go out again ... [just in time for aqua boogie] I will have to take it easy tho ...

Then by about the 21st of feb I should be doing really okie dokie ...

Then a few weeks later I get to go and do it all over again ...


For those that are interested I am having what they calle MIBG Thearpy ... I have a fair bit of info if anyone is interested.

Yup that is my story ... for now. And in compairison from the scan in march [03] to the one I had in oct [03] there was less [which is good] intake of the goop. So that means that the chemo has been working, slowly, but working non-the-less.


* Allie
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  #2 (permalink)  
Old Jan 06, 04
We look so good in love
 
Join Date: Aug 2002
Lil Bunny is an unknown quantity at this point
i always read all the things you post about your treatments and it sounds SCARY. your a very brave (its got the word RAVE in it) and strong person and i with and hope that everything works out great for you in the end.
keep your head up!
cheers
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  #3 (permalink)  
Old Jan 06, 04
in love with lostboyscout
 
Join Date: Oct 2001
All!e is an unknown quantity at this point
thanks.

it's hard as hell, esp when there isn't much research done on the kind i have .. it's like i'm the research most of the time. honestly im really scared ... i donut like it, somedays i stay in bed the whole day and pretend im someone else ...

other days i feel like im top of the world ... i have a feeling that i may being having less of the on top of the world days ... for the next while ...

but staying strong is what wins in the end ... without the support i have from my family, i know i couldn't do it ... remember it's all about the people around ...

one thing is for sure ... i sure know who my actual friends are now ... not just a phone full of random raver numbers ...

blah, i ramble a lot
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  #4 (permalink)  
Old Jan 06, 04
FK Slob
 
Join Date: Sep 2003
Pho Bich Nga is an unknown quantity at this point
stay strong All!e. We've never met but best wishes anyway, you sound tough :)
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  #5 (permalink)  
Old Jan 06, 04
Registered
 
Join Date: Jan 2001
cheeseburger is on a distinguished road
as that spanish d00d would say

You can do it!

i should really find the sample.. i do a really bad accent



Quote:
Originally posted by All!e
thanks.

it's hard as hell, esp when there isn't much research done on the kind i have .. it's like i'm the research most of the time. honestly im really scared ... i donut like it, somedays i stay in bed the whole day and pretend im someone else ...

other days i feel like im top of the world ... i have a feeling that i may being having less of the on top of the world days ... for the next while ...

but staying strong is what wins in the end ... without the support i have from my family, i know i couldn't do it ... remember it's all about the people around ...

one thing is for sure ... i sure know who my actual friends are now ... not just a phone full of random raver numbers ...

blah, i ramble a lot
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  #6 (permalink)  
Old Jan 06, 04
www.akeel.ca
 
Join Date: Sep 2001
Akeel has a spectacular aura aboutAkeel has a spectacular aura about
Good luck Allie :)

See you when u get back!
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  #7 (permalink)  
Old Jan 06, 04
Get down, I do!
 
Join Date: Aug 2002
Cdn_Brdr is just really niceCdn_Brdr is just really niceCdn_Brdr is just really niceCdn_Brdr is just really niceCdn_Brdr is just really niceCdn_Brdr is just really nice
Good luck Allie.... while I can't say I know what YOU'RE going through I can definitely understand what it's like. The battle can be long and hard but we just have to keep fighting it. In the end we'll both win and we'll have like a duo party!!! It'll be the biggest, most happiest party EVAR!!!

Keep your head up girl, my thoughts and prayers are with you. Much love... :kimmie:
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  #8 (permalink)  
Old Jan 07, 04
.fade.into.dust.
 
Join Date: Jan 2001
c.tard is an unknown quantity at this point
good luck with the new treatment allie.
i hope this works and the sooner you can get through all this.

i really admire your strength through all this, it's amazing. i don't think i'd ever be able to do that.

take care :)
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  #9 (permalink)  
Old Jan 07, 04
aka "Cyrus"
 
Join Date: Jul 2001
Candy-Kid is an unknown quantity at this point
I hope that everything goes for the best. Wishing you the very best tha ti can do from this computer. Be well and talk with ya soon
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  #10 (permalink)  
Old Jan 07, 04
billy bad ass
 
Join Date: Jan 2003
bren is an unknown quantity at this point
good luck !!

bren
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  #11 (permalink)  
Old Jan 07, 04
E is for Erica ;)
 
Join Date: Feb 2001
Erica is an unknown quantity at this point
You're amazingly strong and courageous All!e! If you need any company during the hermiting phase, you know where to find me! <3
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  #12 (permalink)  
Old Jan 07, 04
in love with lostboyscout
 
Join Date: Oct 2001
All!e is an unknown quantity at this point
Thanks. I have 7 days left in beautiful bc, then its off the fucken cold edmonton alberta, boo!!

Shaun, or Shawn [i am not sure as to which way you spell it] How is your treatment coming along? Good I am sure!!


So who wants to go out this weekend? My last weekend of going out for sometime ... someone, anyone?


* Allie
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  #13 (permalink)  
Old Jan 07, 04
hogan knows best
 
Join Date: Dec 2001
.muffy. has a spectacular aura about.muffy. has a spectacular aura about
Best of Luck sweetheart
You're in our thoughts and prayers
:)
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  #14 (permalink)  
Old Jan 08, 04
in love with lostboyscout
 
Join Date: Oct 2001
All!e is an unknown quantity at this point
:)

anyone want to go out Saturday night, as it'll be my last wknd of partying for a while? Come on, anyone?
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